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20-September-2008 09:55:51 - Generation Rescue Autism cure movement Issues Autism therapies Causes of autism Sociological and cultural aspects Organizations Athletes Against Autism Autism Research Institute Autism Society of America Autism Speaks Autism Treatment Trust Defeat Autism Now! Generation Rescue Talk About Curing Autism People Bernard Rimland Paul Shattock Vijendra K. Singh Edward Yazbak view talk Generation Rescue is a nonprofit organization established in 2005 by Lisa and J.B. Handley. The organization targets ADHD, Asperger's, PDD-NOS, and autism. It claims that such diseases are primarily caused by vaccines containing mercury, aluminum, and live viruses, by heavy metals in the environment, and by overuse of antibiotics.1 The group gained awareness from an aggressive media campaign that sponsored full page ads in the New York Times and USA Today.2 Generation Rescue believes that autism and other developmental issues are environmental illnesses and partially blames thimerosal, a vaccine preservative, as a source of the poisoning. It claims that biomedical intervention can cure these various ailments. Because of Generation Rescue's public profile through national advertising and because its point of view is not shared by the mainstream medical community, their message has been controversial. While they claim that their position is supported by published research,citation needed reliable medical sources say there is no convincing scientific evidence that vaccines cause autism3 or that diets or drugs can cure it.45 The organization maintains two websites, Generation Rescue1 and PutChildrenFirst.6 The former details the organization's points of view described above. The latter alleges a cover-up by the Centers for Disease Control concerning the role that vaccines have played in recent increases in the number of reported autism cases, whereas mainstream sources. Contents 1 Media campaign 2 Rescue Angel program 3 Other high profile supporters 4 Criticisms and responses 4.1 Lack of peer-reviewed research 4.2 Chelation 4.3 Disassociation of cited researchers 4.4 Claims of inaccurate statistics 5 See also 6 References 7 External links Media campaign Beginning in the spring of 2005 and running through January 2007, Generation Rescue began a national media campaign in the US, placing advertisements in such publications as USA Today2. The print and internet advertisements are part of a broader campaign to send the group's message about the possible connection between autism and mercury poisoning to politicians, medical professionals and parents. Generation Rescue's founders have also been featured in interviews on both NBC and Foxcitation needed as well as in a cover story in Willamette Week.7 Rescue Angel program Generation Rescue has developed a mentoring program, 'Rescue Angels', for other parents. These 'Rescue Angels' are parents of autism spectrum children who agree with the organisations methods, willing to help other parents in treating their children, sharing expertise, local knowledge and experience. The website states that Rescue Angels are parent-Founders of Generation Rescue who are volunteering their time and knowledge to help you. They are parents of children diagnosed with an autism spectrum disorder who have either recovered their own children and/or are currently treating their children biomedically.8 Other high profile supporters Generation Rescue has attracted the support of Jenny McCarthy and others who have become very active in the autism community, supporting a variety of causes since McCarthy's son was diagnosed with autism. She has since written a book, Louder than Words, about her experiences. McCarthy's celebrity status has enabled her to attract media attention as well as sponsorship from nutritional supplement manufacturer Global Health Trax which distributes the probiotic product ThreeLac that her son uses.9 On August 2, 2008, McCarthy will appeared on WWE Saturday Night's Main Event on NBC to raise awareness of Generation Rescue. WWE.com set up a link on July 21, 2008 for fans to donate money to the charity, and posted videos of various wrestlers, such as John Cena, Edge, The Big Show and Mickie James, urging fans to donate.10 Criticisms and responses Lack of peer-reviewed research Generation Rescue bases much of their case on publications that do not go through a proper peer review process. In particular, an article Generation Rescue cites in the Evidence section of its website, Autism: A Novel Form of Mercury Poisoning11 is published by a journal devoted to medical hypotheses; the hypothesis has not been confirmed by credible scientific evidence.1213 Chelation Bradford Handley, a Generation Rescue founder, claims that autism symptoms can be reversed using chelation. This is in contradiction of the scientific capabilities of chelation, as evidenced by at least one study. The Encyclopedia of Children's Health states that the chelation process can only halt further effects of the poisoning; it cannot reverse neurological damage already sustained.14 Disassociation of cited researchers Generation Rescue's second New York Times advertisement had to undergo one alteration due to one scientist who asked to be removed from the ad. Also, after the ad ran, several of the scientists thanked in the ad wanted to disassociate their work from the mercury/autism connection.15 This group of scientists wrote: we believe GenerationRescue's advertisement, at first appearance an innocuous gesture of appreciation, may actually mislead the public into thinking that the mercury-autism hypothesis has stronger support in the scientific literature than it actually does. One of the scientists who signed that letter asking not to be associated with the mercury/autism hypothesis, Martha Herbert, is still frequently cited by Generation Rescue and others as a supporter. Claims of inaccurate statistics Generation Rescue's home page has been criticized for containing inaccuracies regarding the prevalence of autism. As of 2006, it claimed that the prevalence of autism in the 1970s was 1 in 10,000. In reality, the prevalence of autism was known to be 4-5 in 10,000 as early as the 1960s. Additionally, the site does not clarify that the prevalence of 1 in 166 is for ASD, not Kanner autism as is the lower prevalence number. The increase of 6000% 60 times claimed in the GR home page should be about 1200% 12 times if only the lower prevalence number is corrected. In February 2005, J.B. Handley falsely stated on a TV interview that the notion of autism is mythical, stating that it is a misdiagnosis for mercury poisoning. He also claimed that autism did not exist before thimerosal was put in vaccines, and that chelation therapy can cure autism in two years or less.16 See also List of autism-related topics List of vaccine topics Tailings References ^ a b Generation rescue 2007-07-19. Retrieved on 2007-08-20. ^ a b Ad in USA Today, April 6, 2006: unveiled the new website, PutChildrenFirst.org ^ Rutter M 2005. Incidence of autism spectrum disorders: changes over time and their meaning. Acta Paediatr 94 1: 2-15. doi:10.1080/08035250410023124. PMID 15858952. ^ Christison GW, Ivany K 2006. Elimination diets in autism spectrum disorders: any wheat amidst the chaff?. J Dev Behav Pediatr 27 2 Suppl 2: S162-71. doi:10.1097/00004703-200604002-00015. PMID 16685183. ^ Broadstock M, Doughty C, Eggleston M 2007. Systematic review of the effectiveness of pharmacological treatments for adolescents and adults with autism spectrum disorder. Autism 11 4: 335-48. doi:10.1177/1362361307078132. PMID 17656398. ^ PutChildrenFirst.org 2006-11-12. Retrieved on 2007-08-20. ^ Generation Rescue featured in the Willamette Week local newsweekly ^ Treatment: find a Rescue Angel. Generation Rescue. Retrieved on 2007-08-20. ^ http://www.ghthealth.com/ghthealth/company/news.aspx News release about Generation Rescue fundraiser ^ http://www.wwe.com/shows/snme/generationrescuesnme/ Generation Rescure on Saturday Night's Main Event ^ Bernard, S., Enayati, A., Redwood, L., Roger, H., Binstock, T. 2001. Autism: a novel form of mercury poisoning. Medical Hypotheses, 564, 462-471.1 ^ Doja A, Roberts W 2006. Immunizations and autism: a review of the literature. Can J Neurol Sci 33 4: 341-6. PMID 17168158. ^ Offit PA 2007. Thimerosal and vaccines-a cautionary tale. N Engl J Med 357 13: 1278-9. doi:10.1056/NEJMp078187. PMID 17898096. ^ Encyclopedia of Children's Health entry on heavy metal poisoning ^ Issues arise concerning citations used in Generation Rescue's advertisements ^ Videos and critiques External links Pervasive Developmental Disorders portal GenerationRescue.org - Organisation's Website Mothering.com - 'Is the American Academy of Pediatrics losing credibility with parents and pediatricians?' Bobby Manning, Mothering October, 2005 ScienceDaily.com - 'The Age of Autism: Heavy metal', Dan Olmsted, UPI' May 24, 2005 SFGate.com - 'A child's return from autism: Couple eager to share their conviction that mercury poisoning was the culprit' Leslie Fulbright, San Francisco Chronicle May 25, 2005 v d e Pervasive developmental disorders / Autism Main Causes Comorbid conditions Epidemiology Heritability Sociological and cultural aspects Therapies Diagnoses Asperger syndrome Autism Childhood disintegrative disorder Fragile X syndrome Multiple-complex Developmental Disorder PDD-NOS Rett syndrome Semantic pragmatic disorder Controversies Autism rights movement Autistic enterocolitis Chelation MMR vaccine controversy Neurodiversity Refrigerator mother Thiomersal controversy Lists Autism-related topics Fictional characters Further reading on Asperger syndrome People on the autistic spectrum People speculated to have been autistic Groups Aspies For Freedom Autism Network International Autistic Self Advocacy Network Autism Society of America Autism Speaks Generation Rescue National Autistic Society Safe Minds Wrong Planet Retrieved from http://en..org/wiki/Generation_Rescue Categories: Activism | Autism | Health and disability rights organizations in the United States | Non-profit organizations based in the United States | Organizations established in 2005Hidden categories: All articles with statements | Articles with statements since August 2007 Views Article Discussion this page History Personal tools Log in / create account Navigation Main page Contents Featured content Current events Random article Search Go Search Interaction Community portal Recent changes Contact Donate to Help Toolbox What links here Related changes Upload file Special pages Printable version Permanent link Cite this page This page was last modified on 7 August 2008, at 10:11
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